View Full Version : Fragile X and Raw food
01-29-2010, 07:29 AM
My son has Fragile X . I am trying to get him to eat more raw food . My goal is to get him there sooner then later. He Loves apples , bananas , Avocados , Water melon. He eats raw in the am and for his snacks. But the greens are the hard part . He smells everything before he eats it ( Not sure why)he will drink some juices but thats been hard as well.. smothies are to thick for him. Any thoughts would be great..
01-29-2010, 09:51 PM
What kind of greens are you giving him? For me, the flavor of any greens become masked when I add mashed avocado, nama shoyu, nutritional yeast, dulse flakes, and maybe some other veggies like cucumber, onion, bell pepper etc to it. Nama shoyu and nutritional yeast aren't raw but it's a start for getting one weened on greens.
01-29-2010, 10:37 PM
the only greens he gets it the ones that i put in his cooked fritatta..I am going to start juicing apple juice every and going to go get a cup with a lid and a straw so he can not see the color green. I hoping by me telling him that it is juice he will drink it.. I have tried adding foods in with other foods but any thing altered he won,t touch. Kids with fragile x are very set if the the food looks or smells a certain way they won't touch it. Thank you for the good tips.:)Jstmee46
01-29-2010, 11:27 PM
How about kale as a food wrap for a filling made of the things he does like, or maybe kale chips. I bet he would love the chips. If he is ok with crunchy snacks you could even incorporate a good amount of kale or sprouts into flax crackers with bananas and nut butter spread on them. I'm thinking chips or crackers could also be flavored with things you know he likes. Like adding dehydrated watermelon or bananas (dehydrating intensifies the flavor) to a cracker recipe. Can you use his smell test to your advantage by scenting things with cinnamon, mint, or those things he does like?
Are other senses heightened as well as taste and smell? Specifically, is he keenly aware of your feelings about things? Could it be possible he can sense if you are nervous about him not liking a new addition, or that you are slipping a new one in? If that were the case might it help if you were to involve him in the process of making it? If he is able to hang around while you are in the kitchen, maybe something as simple as watching the preparation, hitting the button on the blender, helping roll wraps, adding ingredients to a pitcher/feeding the juicer, mixing cracker ingredients, or helping rinse sprouts would give rise to curiosity that would win out over the apprehension of trying a new food.
01-30-2010, 07:35 AM
All great ideas. I have made several different style chips in my excalibur and he helps me mix and stir it all to getter . Mason is such a grazer he likes to eat small meals all day long.. I think my hardest hurdle is my husband. He is so old school . He thinks if you don't it a sad diet then you will get sick. So he has been finally supporting me on changing mason diet. Mason is all about texture and smell . So if it is not cheese , pasta , bread, fritata ,apples , bananas, avocado, melons He won,t even give it a second look.. So now that my husband is on track I have cut out all chips. his cheese is down to two sticks a day from 4-5. the next is the pasta. I am laying out his food choices and the last week he has been going more for the fruit of his choice instead of the sad foods.. He eating habits are a lot like kids with autisum. Today I am going to the farmers market to get my case of apples and mixed greens and i am going to juice his greens in stead of blend in with apples , keep your fingers crossed . I will let you know how it ends up.
01-30-2010, 08:38 AM
I generally make our juice green in the morning and strain it. Like mostly orange, occasionally mixed with a little lemon, apple etc. We've even been doing wheatgrass and other grasses and the sweetness really helps mask it. Have you tried this? A little wheatgrass goes a long way!
I mean just about everything is helped by diet, but was wondering if there are others with this syndrome in their families who have noticed SIGNIFICANT changes with a better diet?
Fragile X was new to me, so I looked it up.
01-31-2010, 09:21 PM
My sons are pretty sensitive (One has AS), and what I did, was use blueberries or other darker fruit to disguise the color. Then, they get used to that. THen i add pinapple, which makes a little different texture, a little more each day, to get used to that. THen I started adding a tiny bit of collard greens (not very different tasting), until they got used to it. My sons would line up for a glass of green smoothie. Now, others have used a colored covered cup with a colored straw to "smooth" the way....... Btw, I got to the point where I had to make two blenderfuls at a time, so be ready!.
01-31-2010, 10:06 PM
Today i made a smoothie with apples ,orange ,banana cacoa powder just enough for it to taste like choclet milk.. He drank a couple of mouth fulls then he was done. I never thought about straining it ,so it was not so thick.. Great idea i am going to try that with a little bit of greens and just start building that way..
I have talked to alot of parents that have kids with autisum and they are really in to the gluten free diet.. . Masons disability is a genetic disorder. I know that by changing the way he eats now will help him in the future. Kids with fragile x tend to be over weight and likly to get diabeties ..thank you for all the good ideas
a great web site to go to is www.fragilx.org ..
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