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kaybee
10-06-2008, 02:07 PM
OK, I dont know if anyone is going to have any further solutions, as I have been to several naturopaths as well as a holistic dr, including naturopaths at Bastyr, which is the alternative medicine medical school in Seattle, as well as trying a billion things on my own, but its worth a shot.

I originally went to the drs. because i was having a major problem with "brain fog"; i felt like i was hungover every single day until about 3 in the afternoon. couldnt function optimallly, had to drag myself around, couldnt get my schoolwork done. i was also feeling generally run down and tired and burned out, which i suspect had to do with the combination of my body exhausting its supply of nutrients and well-being over the 6 years that i pushed myself doing bicycle courier work, also combined with STRESS from an unfinished thesis and graduate program, along with other factors in my life. muscle aches and pains all the time, even after gentle exercise. i felt AND STILL FEEL like my body just doesnt repair itself. any activity or new movement = achy-ness, and the achy-ness seems to persist, instead of going away over time as we would expect when we use a muscle repeatedly over time. doc wanted to put me on thyroid meds and hrt, both of which i turned down, searching for non-drug options. fastforward a year. still same problems. tried diff supplements, dietary changes, changing sleep patterns, lived in different countries different cities, different jobs. no change. went to bastyr in seattle and they said. 1. i did NOT need hrt, my female hormones were fine, which is what i had intuitively felt anyway. 2. my thyroid was underfunctional, but not exactly in the range of hypothyroid. 3. i was run down and stressed out. 4. most of my vitamin and mineral levels fell "within normal range". so the good news was that i didnt have any serious "illnesses". the bad news was that nothing stood out as needing treatment, which made it more difficult to treat me. They acknowledged that my diet was very rich in nutrients, --though they are not necessarily supporters of a raw diet, as they do alot with TCM and TCM is not raw-food friendly. They arent closed to raw food, which is great, but they dont think it can work for all people and in all circumstances; they dont think its automatically the optimal diet for everyone. Conclusion: my body was being given great nutrition but i wasnt benefitting because my absorption SUCKED. they attributed this to stress and to the fact that i was always on the go, eating on the run, and my body couldnt settle and focus energy on absorbing the food so it just kind of went right through without the nutrition being absorbed. They also said my adrenals were exhausted. put me on a bunch of supplements, and told me that it was probably going to take lifestyle changes--reducing stress, regular GENTLE exercise, taking time to sit down and eat meals, etc etc etc. but they also suggested that there was probably only a certain level of health that i would get to without adding animal foods back into my diet and that when i reached that plateau i would have to think seriously about whether i wanted to continue to be not-optimal, or whether i wanted to add animal foods back in. As a long-time vegetarian, and going on 7 years mostly vegan, (2-3 years or so mostly raw) for reasons of ethics and compassion (and now, health a bit too), adding animal products back in IS NOT, and will never be, an option for me, and i told them that. my last appointment with them was in May. they told me that over time, by making lifestyle changes and taking the supplements, i should experience an improvement in my conditions. my major concern was the brain-fog, as it made me unfunctional and it scared me. sure enough, the brain fog has FINALLY more or less dissipated--but i have changed my lifestyle radically in that i am working only sporadically, im living on the coast near the beach where the air is clean, my thesis is more or less completed after 5 years, and though i still have a lot of schoolwork to do, ive had more "chill time" than ive had in a while in the sense that im not running around on the go all the time from job to job, etc. WHAT REMAINS, however, is the achyness. almost ALL the time. even when im not getting any exercise I hurt. throw the exercise in and I hurt more, even when it is gentle and consistent (i.e. low pressure walks 1-2 mile walks on the beach with my dog or whatever). anytime i try a new activity or make a new movement, it adds to the number of body parts that hurt... and i dont seem to EVER fully recover from the muscle achyness. Ive been on oral magnesium supplementation for 7 or so months, though i have gone through periods where i dont always take it every day. lately i have been though, and ive also added in the magnesium oil from sunfood, as ive read that if you are already magnesium deficient, sometimes its ironically difficult to absorb it through eating; transdermal is more effective. last week i had two REALLY good days, which occurred a few days after i started using the oil, but i dont know if it was really because of the oil becuase now for the last 4 days im back to hurting again. any new movement, or even varied movement that i might not do everyday, such as stuff in the garden, makes me tight and achy. and it just doesnt seem to go away. i tried doing the exercises out of peter egoscues book "pain free for women" to start to activate muscle groups that i dont think are being used properly, and to realign my back, as my back and neck have been out of line for years; the exercises are GENTLE; just stretching. and i couldnt tolerate it after just 2 days of the exercises because i was so hurting. i found this even when i was doing bike courier work years ago--that my body NEVER seemed to adjust itself to the new activity; even after doing it for years, i was still achy all the time....

So yeah, any suggestions....??? the supps that i have been taking are a eleuthero adrenal support, thyroid support formula with herbs and seaweed, vit D, cal/mag, B12 (though they prescribed me a pill form and i thought sublingual was best..), and im supposed to be using plant enzymes but I use them only occasionally because they are so expensive. also was taking iron since march or so but ran out now. and now also the mag oil


my diet is mostly raw most of the time; occasionally fall off the wagon and get my hands on some bread or something that i cant tear out of my hands ;) and occasionally do brown rice or something from the veg cafe or if im at a friends house, but rarely. sometimes, but rarely, really fall of the wagon and get into some cookies or pie or something, if im a guest at someones house. ive lived periods where ive been totally 100 raw for periods of time, and still no improvement in the conditions. im eating a fair amount of fruit, a fair amount of greens and veggies, some seeds and some nuts but nut availablity is kind of limited. I do GS when i can get them down, but they are kind of hard for me to stomach. ive been doing hemp milk with sprouted hemp seeds lately too, and lately have occasionally made flax crackers or something in the dehydrator. do a fair amount of homemade pesto or avo sauce on zucchini pasta, alot of salads, and scarf down dates when i can get my hands on them. use non-raw stuff like nutritional yeast, miso, and tamari a few times a week at the moment, though i have gone through periods without these. I add dulse, which i love, to alot of my salads, but dont have luck making myself eat most of the other seaweeds. am going to go harvest some bladderwrack when i get my car back and dry and powder it though, because ive read that 5 g a day has given equivalent results to use of thyroid hormone, and id love to stop buying these herbal supplements, especially since i have to have them shipped from the states. (my thyroid support formula is vegan though, no actual hormone in it).

so what am i missing? im tired of hurting all the time. i wonder if im not ABSORBING enough protein or something. but i cant FORCE my body to absorb stuff. SO frustrating. I tried vegan HCl but I didnt trust the company it came from because it had a home-made-ish looking label and it made my tummy hurt. i know ACV is supposed to help with digestion but Ive always HATED vinegar and it gags me to try to choke it down. i know fermented foods might help digestion as well, but the kombucha in the HFS says "heat treated on it (go figure...whats the POINT of heat-treated kombucha), and i dont seem to be able to get things like sauerkraut down, there is some kind of underlying smell that is so yuck to me...though i have had kimchi i liked back in the states, and ONE brand of raw sauerkraut (deep roots) that was fab.

So, any suggestions?

thanks so much.

kaybee

sport
10-06-2008, 03:34 PM
I think that you need some time out.
If you are not tied up this weekend why not come and stay for a few days.

smoothiegirl
10-06-2008, 03:41 PM
My experience has been that when you can't find out what's wrong and you have a multitude of symptoms it's candida. Stress is a major factor in the growth of candida. Just a thought. You seem to have a pretty stressful lifestyle. I had a bad outbreak due to stress- malabsorption, lethargic, confusion, foggy thinking, numb hands and feet, bad cravings for sugars and breads, achy muscles and joints, just anything and everything.

notwell
10-06-2008, 03:45 PM
wow, you sound similar to me. what do you think helped with brain fog?

kaybee
10-06-2008, 04:38 PM
ahhh, sport, thanks---- wish i could but i work sundays (my ONLY reliable day of work) and car is in the shop with a blown head gasket at the moment... i def want to get down to see you sometime. i know by my post it sounds like im not feeling that well--which im not--but believe it or not things have improved considerably since May; at least this brain fog thing is gone most of the time. Im getting more of a chance to "chill" here than I have in a long time...but Im kind of "on-call" for work at the hostel at the moment; work is so minimal now for the winter that im trying to grab whatever i can. so yeah, when my car is more trustworthy and i have a few guaranteed days off from work, ill def come down. trying to cram for a latin exam at the moment that i have next tuesday too. if i pass i get to go defend my thesis this semester. if i fail i have to wait till the spring.... crossing my fingers cuz id love to just get it out of the way.

smoothiegirl--yeah, i wondered about candida. i also suggested that to the drs. at bastyr, as a few years ago when i was ill a different holistic dr had done one of those live blood analyses and told me there was candida in my blood. he said i had leaky gut and that the candida had gotten into my blood. he put me on nystatin or some crap and told me i had a wheat/gluten/alcohol sensitivity (which appareently i dont), but anyway, the naturopaths at bastyr told me that its not possible to have candida living in your blood; that its not possible to have a systemic candida infection; that I could get a yeast infection (i.e. where women usually get yeast infections....), but that i could not have it systemically. ive definitely seen alot written that says that you CAN have a systemic one, but i figured that if that were the case the drs from this alternative medical school would be on top of it...i mean its an alternative holistic medical school where each student studies acupuncture, naturopathy, phys med, and i forget, i think theres one other rotation but i forget what. so maybe candida is something to look into--although the idea of MORE DIETARY RESTRICTIONS is incredibly frustrating to me; also frustrating is why did they tell me thats not a possibility?... argh. but WOW smoothiegirl, my symptoms sound SO similar to yours...i guess maybe i should look into it as a more serious possibility. yeah, bread and sugar cravings are a huge thing for me too....

notwell--i cant say for sure what finally helped with the brainfog. i think it was a combination of factors. i dealt with it pretty much every single day for over 2 years; i had no control over it, and people really just didnt understand what i was going through AT ALL. I tried all sorts of things, and I even tried to "psyche" myself out of it or mentally overpower it, which didnt work. I even had a sort of mini-brain scan with brain activity sensors done by a personally trusted therapist who does biofeedback training. He said that part of my brain that should be awake was actually "sleeping" during the day. I also suspected that maybe i had a sleep disorder, but there wasnt time to arrange for a sleep study with bastyr before i left seattle, and now im in ireland with basically no insurance so thats no longer a possibility. besides, if a western med GP found I had a sleep disorder theyd just want to stick me on meds, and i dont want that anyway, so the best i can hope for is that slowing down and making lifestyle changes will correct the sleep disorder, if i have one.
But as for getting rid of the brainfog (i assume youre having this problem and thats why youre asking..), i think it was a combination of reducing stress--i.e. i moved from a long-houred, sort of high-pressure, physically demanding job(s) to only working sporadically at things like babysitting, working at a stables, organic gardening, hostel work, and whatever else i can get my hands on. the drawback is that i have a significant credit card bill that has accumulated from past years school tuition, moving and living costs, etc, that i cant pay off on as little money as im able to make at the moment (work is pretty scarce here, particularly during the winter), but Ive been able to slow down and not be in panic-adrenaline mode all the time--which is SO hard for me because I love being on the go with 5 million things to do...guess its sort of like an addiction. Ive also had alot of mental stress because of trying to finish my grad degree and complete my thesis, and that is finally nearly finished. I seriously think that the hassles that i went through with my school and profs and the thesis over the last 3 years and my seeming inability to be able to produce exactly what they wanted was so overwhelming to me that it really contributed and in fact at least in part if not in whole, CAUSED the brain fog in the first place. the overwhelmedness caused the physical symptoms and then i had no control over getting rid of them, or something. So I think the end being in sight for that is a huge contributing factor to it mostly going away.

so

1. stress reduction
2. use of supplements-- i think the supplements i was taking probably helped too, especially the ones for my adrenal glands
3. forcing myself to slow down. not living in "overdrive" all the time

a couple further notes of advice for you on brain fog issues, if thats what you are dealing with:

-the first dr i went to thought it was from hypothyroid. one thing we tried, which didnt work for me, but apparently gives some people quick results, is high potency iodine pills; he used something with the brand name iodoral.
-i also think B12 supplements MIGHT help for some people, if they are B12 deficient
-and, just to throw this out there, the first dr i went to see wanted to put me on hrt, which i didnt want, didnt take, and, in the end, according to the drs at bastyr and my own intution, didnt actually need, BUT my point is that this dr, who was a holistic dr. knew another dr. who had used hrt, specifically "the Wiley Protocol" which uses bioidentical plant based hormones, in some sort of specific concentrations-- anyway, i guess that dr had put someone on this and their brain fog went away. now, for me, the fact of one dr, on the other side of the country, had had a result of treating brainfog with HRT was NOT enough for me to be willing to subject myself to it because who knows if that womans situation and mine were ANYTHING alike. BUT, im just throwing this out there in case its something you might want to look into.

smoothiegirl
10-06-2008, 05:18 PM
Kaybee,
It can be some nasty stuff if it's left untreated. It can attack the body organs. I was just loving the raw thing until I discovered all that fruit sugar was just causing the candida to explode and grow. Candida feeds off of breads and sugars. I can see some white spots in the stool sometimes and it's dead yeast. I'm taking a really good live, liquid raw probiotic to put the flora back into the gut to kill this mess. Living Streams Probiotics. Just as much of it as I can stand without detoxing too bad. The live bacteria enter the body and eat the bacteria, yeast, mold, waste and other stuff. No more fruits for now. I am doing a cleanse along with the probiotics. I've had a really bad case of it. Been sick since February. Hope this helps. I did a candida search on here and some of the ladies have used garlic capsules to kill it. That hurt my stomach and I smelled bad.:)

kaybee
10-06-2008, 06:23 PM
wow. that probiotic sounds really good. i tried one called threelac a few years ago after that guy told me i had yeast in my blood. it was supposed to be a really good one but i dont know if it really did what it claimed... anyway, its probably going to be at least november before i could get my hands on that as thats the soonest I know anyone coming here from the states.... i wonder if the airport scanners will kill the probiotics though...? in the meantime I have some hipotency one, i forget the brand; one that naturopaths prescribe, and i also just remembered I had one of those Candigone kits that i had brought with me last year and never used.... so i might try that. its just 2 solutions mixtures of herbs though, a 15 day program. and they reccomend using it with candizyme, which breaks the cell walls of the yeast..but i dont have candizyme and dont think i can get it here...so i wonder if trying to do the cleanse just with the candigone herbs and the probiotics i have here, without the candigone, etc is worth a try or just a waste of money....those candigone kits are like 30 bucks a pop and only enuff for 15 days....

ive read alot about candida, even on raw foods websites. but most people said that the fruit sugar, as long as you were staying all raw, wasnt an issue; it was only if you added in refined sugars and stuff...but is that not the case?...have also seen people who have said its not the sugar; its the fat; cut out the fat.... but argh. i already feel like my diet is SO limited. i mean i really want to feel better, but HOW do YOU manage??? dates are my best friend. i dont have huge quantities around all the time but gosh i hate dietary restrictions.... i dont feel like i overeat on fruit but seeing as i cant have other "comfort foods" like bread when im raw, fruit is one of the more attractive raw foods to me....so it sucks to omit it....

also, i dont understand the deal with fermented foods... for example, this candigone thing i have says on the directions to try to avoid all fermented foods while on it, to help discourage yeast....and ive seen posts on here talking about kombucha contributing to candida...but i thought fermented foods were supposed to have GOOD probiotics in them....!!!!???? further, alot of the herbs, including garlic, and GSE, ie. the herbs included in this candigone thing i have, i think also have antibacterial activity...but wouldnt that kill the good bacteria along with everythign else? doesnt seem ideal...so i dunno..... the directions for candigone also say under the "acceptable foods" WELL COOKED grains..... but im not going to go back to eating cooked. so can i not have sprouted grains?

thanks.

kaybee

flyinion
10-06-2008, 06:43 PM
If you think you have an overgrowth of candida you might want to check out our discussion we had here http://www.rawfoodtalk.com/showthread.php?t=44776 about Candida and parasite cleanses. The quick and dirty of it is that Candida is essentially a yeast based parasite that you can reduce/get rid of with a good parasite cleanse. Yes, this removed both bad and good bacteria at the same time. As I've heard it put though, this leaves you with a "clean slate" from which you can rebuild. Also, once the cleanse is done you could take probiotics to quickly rebuild the good gut flora for a bit. It's pointless to do it while doing a cleanse as the cleanse will just kill the probiotics.

cavany
10-07-2008, 01:32 AM
Hi Kaybee

I sent you a PM with a suggestion of Soul Retrieval and in hindsight I probable should not have sent it as a PM but posted it here. Let me explain why and what happened to me over the last few weeks.

I would not consider myself overly religious although I was brought up a RC I don’t agree with its teachings and I don’t go to mass and the only time I’m seen in a church is for funerals. But I do believe we are more than our physical bodies, I want to and do believe we have some extra essence and I suppose this is called a soul.

I believe in my bodies ability to heal it self and will always looks for a natural way to heal first. I use homeopathy, I do reiki, I eat well, and I juice and hydrate my body well. Currently I am in pretty good health.

However for as long as I can remember I seem to have spend a lot of time in my head feeling I am in a fog, dreaming of something different, not connected, not present, sometimes being overly tired in fact I have felt deadened. I have had some addictions and I feel I have always looking for something to fill this empty void within me. I am always looking for healing.

A few weeks ago I went to a sound journey healing workshop, in Bandon, Co.Cork and this session was conducted within a room with about 70 other people. The healer asked us to quieten our minds and just listen to the sounds. He was not musically trained but played a number of instruments including a didgeridoo, a drum, a rattle, some flutes, a Jew harp and some whistle. During this performance I felt something shift within me and I also kept thinking the lady beside me was singing in my ear. Every time I opened my eyes to check her, the singing stopped and she looked asleep. At the end of this session the healer asked if anyone want to return tomorrow for some further sound healing so I decided I would.

The nest day only 5 people turned up and before he started he asked each of us what we wanted to receive. Most of the others present spoke about difficult times they were experiencing which they needed help with. When I was asked I said I had no issues, no health problems and everything was great except I needed to quieten the chatter within and be more present.

He made a decision to heal one woman and asked us all to help by positioning us around her focusing good will at her and I also play a drum and he his instruments. She needed it most and I really saw a change after her healing session. Then he asked us to all lie down and he would heal us all. This session lasted for about 3 hours and I think included something called soul retrieval. After it was over he asked how we all felt and to be honest I didn’t really feel any different. However over the next few days I became alive, I have never been as here and focused as I am now. I have loads of energy am sleeping 5 ½ hours a night and also have never felt so calm.

I have since researched soul retrieval and it makes sense to me these feeling of not been there because it states sometimes you can be stuck somewhere else at some past trauma be it large or small. I had my share of traumas which I don’t think I had every gotten past. I felt I left a piece of me behind with the death of my dad in my arms at 11 and the telling off by a childhood friend another time. I now believe that each trauma you experience and if you are not protected by can take a little bit of your essence. This can result where you spend a lot of time not here, exhausted burnt out and searching for something which you don’t know what is.

Dimond
10-07-2008, 07:21 AM
Cavany, thank you so much for sharing your experience. Do you have the name of the healer/center?

Kaybee, many with candida just become 100% raw and find that is enough to get rid of it (myself included). If you use sweetener, stick with fruit or agave rather than honey or maple syrup. Also use a good probiotic formula such as Garden Of Life Primal Defense or even more heavy-duty, Natren Healthy Trinity.

Find better recipes for Green Smoothies, if you're not enjoying them. Since you love fruit, that should be easy. Or try Green Soups.

TaupeRawMan
10-07-2008, 12:12 PM
Kaybee -

I can greatly relate to your story...going on 3.5 years for me. Doctors think Chronic Fatigue from an exhausting job. Your sounds similar, but with added possible fibromyalgia due to the pain that I don't deal with. I found resting in warm dry climates helpful. Getting to bed by 10p also.

cavany
10-08-2008, 01:41 AM
Cavany, thank you so much for sharing your experience. Do you have the name of the healer/center?

Kaybee, many with candida just become 100% raw and find that is enough to get rid of it (myself included). If you use sweetener, stick with fruit or agave rather than honey or maple syrup. Also use a good probiotic formula such as Garden Of Life Primal Defense or even more heavy-duty, Natren Healthy Trinity.

Find better recipes for Green Smoothies, if you're not enjoying them. Since you love fruit, that should be easy. Or try Green Soups.

Hi GilmoreGirl

The healers name is Richard Grossman and what he does is called sound journey. As I said he mentioned he would do a soul retrieval but biased on what I have learnt so far about this it's done more 1 to 1. I think he has left Ireland and I did not ask him what exactly he did.

You know I have tried many things to clear my mind and be more present from being very careful with diet, exercise, hydratation, homeopathy, reiki, yoga and meditation. I even left my job and didn't work for a couple of years to really get to understand myself and find out what I wanted and where I was going. I currently work from home less that 20 hours a week and certainly am not stressed.

I have never been as clear, as present, as calm and as one with everyone and everything as I currently am. I can’t explain what was done during this sound journey in a logical way. It was something that woke me up and if it wasn't soul retrieval it certainly connected me somehow to my spirit.

kaybee
10-10-2008, 02:51 PM
hey all--sorry, ive been off the board for a few days....just got the internet connection at my house and it was sucking up all of my time so i had to swear off it for a couple to get some things done...like SLEEP...

cavany--yeah, the term "soul retrieval" on its own sounds scary, but the way you explained it doesnt. to be honest, im utterly fascinated by all of these "energy healing" things, but Id really like to be able to understand them better; what is being done, where the energy is coming from, etc... as not understanding them scares me a bit. id love to explore these things in the future to try to understand them better. but until i can do that i dont really feel secure taking advantage of them at the moment... i do honestly think my "thing" has to do with a physical lack/physical problem--although i can see that there are stages in my life that i am still attached too too greatly; but i dont think that these are causing the problem; i dont feel like part of me is subconsciusly "left behind" at some other stage. but your story really makes sense in terms of the past experiences of your life and how/why the sound therapy helped you. clearly SOMETHING was going on/happened. I'd just love to understand better what/how....I guess I just tend to be frightened of "spiritual" things and "energy" things very easily because its a realm that it seems we concretely know so little about.... I guess my view is also colored by previous advice given to me by a well-trusted therapist in regards to energy healing, who cautioned me about becoming involved with any sort of "energy healing" from which the source was unknown.... , because how do we know whether the source it comes from/the source that the person is connecting to is truly a good source.... I guess this is off-topic but if anyone can explain more info on energy healing, i would love to hear it. truly fascinating to me but scary as well.

Smoothie girl--yeah, im not sure that just raw can get rid of the candida for me. ive been 100% for fairly long periods of time over the last few years and never have really felt the symptoms abate. so if it is candida that is causing this, apparently it needs more of a kick in the butt than just raw alone. i wish there was a way for sure to know if thats what i have, because i hate to restrict my diet more if its not necessary, but as i said, the naturopaths i saw didnt believe in systemic candida... and im not in a position to see someone else now because i dont have adequate insurance any longer. it seems theres also a discrepancy over whether its contributed to by too much fruit or too much fat.... i.e. cousens and wolfe vs. graham et al. im preparing for a language exam over the next few days so im not going to try to change anything right now as its too hard to have additional dietary restrictions when im cramming for an exam, but next week i might try doing a few fat-free days and see if that makes a difference. ill have to stay busy those days though because if im trying to do any study-type work im always hungry and looking for food, and just fruit and greens isnt gonna do it. i also have this candigone candida cleansing system that i forgot i had but i dont have the candizyme (i.e. the tablets like candex that break down the yeasts coating) to go with it and cant find it in the shops here.... so i might have to hold off on that until i go home in december and can "restock"... .

tauperawman--yeah, i guess our bodies can only run on "back-supply" for so long...ive basically been told that my body is "running on empty." SO HARD when your used to the adrenaline rush from being "on the go" all the time; i miss being busy and my life being crazy and eventful. slowing down to rebuild and heal is really hard for me. havent been given a diagnoses of cfs or fibro...i guess theres some certain pain points you have to have to be diagnosed with fibro...but i certainly have alot of symptoms of cfs. the best i can do is just try to feed myself well and give myself a chance to build myself back up, because even if they gave me a cfs diagnosis, i wouldnt touch their drugs for all the money in the world. drugs dont heal. **Resting in a warm dry climate? hehehe. forget that, im in ireland :) about as cold and damp as you can get (and seattle last winter, about the same) but yeah, i have found that sleep, and EARLY sleep, makes a difference. going to bed at 2 am and getting 8 or 10 hours sleep does not compare to going to bed at 1030 pm and getting 8 or 10 hours sleep. i think i once read that every hour of sleep you get before 1 am is worth its time double? or something....