Calling all celiacs

[jules88]

I have just discovered that I have dermatitis herpetiformis(DH), which is in basic terms a rash that people with celiac get. I have also learned that all people that have DH, are celiac. But....not all celiacs have DH.

My question is for those of you with DH that eat 100% raw, how long did it take for your rash to be gone? It is so itchy I can hardly sleep at night. During that day it doesn't seem so itchy. Any foods like nut or salt that I should avoid? I read on a DH forum that those may aggravate the DH. They also said that it could take up to a year until your are symptom free. What have you all experienced.

I certain that this came about because I was tasting a bit of my husbands pizza here and a taste of cookie there...you get the picture. Not big meals of wheat, but lots of tastes lately.

Please respond as I am desperate to hear other successes

[lafsalot]

Check out this thread: http://rawfoodtalk.com/showthread.php?t=32159&page=2&highlight=celiac+disease

Cathy

[jules88]

Thanks lafsalot!! I had read that before posting. They are a wealth of information, but I was wondering how long after going raw has the rash (DH) gone away. I am doing mostly juices right now. All kinds. Hoping that I can get a jump start on cleaning and clearing everything out. I guess there are meds, but they are pretty toxic and they aren't for me. If anyone has any advice or experience I would appreciate it.

[jules88]

Thanks lafsalot!! I had read that before posting. They are a wealth of information, but I was wondering how long after going raw has the rash (DH) gone away. I am doing mostly juices right now. All kinds. Hoping that I can get a jump start on cleaning and clearing everything out. I guess there are meds, but they are pretty toxic and they aren't for me. If anyone has any advice or experience I would appreciate it.

[juliebove]

Make sure you are not using any gluten externally. It can be in shampoos, lotions, makeup, etc. It is even in Natracare menstrual pads.

[jules88]

Thanks for the suggestion of not using anything external that has gluten in it!! My only questionable product is Dr. Bronners soap which has hemp in it. I only use that on my hands. We put it in the foam pump. I say that hemp is questionable because I used their chapstick once and my lip and slightly above them broke out in about a zillion tiny blisters. The hemp was the only ingredient that had been different from what I had been using. Even then I wasn't sure if that was the culprit so I used it again once and yup the blisters came back. I called the company and of course they said they have never heard of that before. No calls with that kind of reaction. Now I just use the chapstick my sister makes for me. That way I know what is in them.
Any other suggestion/words of advice/comments would be greatly appreciated.

[juliebove]

Thanks for the suggestion of not using anything external that has gluten in it!! My only questionable product is Dr. Bronners soap which has hemp in it. I only use that on my hands. We put it in the foam pump. I say that hemp is questionable because I used their chapstick once and my lip and slightly above them broke out in about a zillion tiny blisters. The hemp was the only ingredient that had been different from what I had been using. Even then I wasn't sure if that was the culprit so I used it again once and yup the blisters came back. I called the company and of course they said they have never heard of that before. No calls with that kind of reaction. Now I just use the chapstick my sister makes for me. That way I know what is in them.
Any other suggestion/words of advice/comments would be greatly appreciated.

It's possible that you have a hemp allergy as well. I'm not sure that is an allergen that is commonly tested for.

I am allergic to almonds and I get a rash if I use anything with sweet almond oil in it.

Daughter is allergic to wheat, gluten, soy and other things and I have to be careful not to buy any shampoos or lotions, etc. with that stuff in it or she gets a rash.

[jules88]

So does that mean that I shouldn't make my husbands sandwiches? Or touch anything without gloves on? He eats a SAD diet.

[Jenifae]

I have never heard of Dermatitis herpetiformis. What is Celiac? Sorry for the ignorance and would like more info if any ould like to share?

thanks

No worries..............

I just looked it up..............wow. Looks like if you go Raw you should start to heal. So Raw is the way to health and healing :)

[jules88]

Yup, that was what I was thinking too. Raw is the way. How can you trust any other food? To make matters worse iodine makes the rash itch more.

[jules88]

Since finding out I have only done juices in hopes that it will start the rash to heal quicker and stop the intense itching. Yesterday it was better until I ate something with salt. YIKES!!!